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	- - - - - - - - - - - - Categories National Organizations Comprehensive Web Sites United States Local Organizations International Web Sites Online Magazines and Newsletters Medical Resources Other Resources for Parents Non-Profit Foundations Educational Communities Other Notable Sites dealing with DS NATIONAL ORGANIZATIONS National Down Syndrome Congress National Down Syndrome Society International Mosaic Down Syndrome Assoc. COMPREHENSIVE WEB SITES (These offer a lot of information on varying topics) Down Syndrome: WWW Page Riverbend Down Syndrome Parent Support Group Down Syndrome Information Network Down Syndrome Educational Trust Sara G's "Being Into Down Syndrome" Page Uno Mas! (Temecula Valley DS Group) Mosaic Down Syndrome on the Web U.S. LOCAL ORGANIZATIONS Northeast: Aim High! (Albany, NY) Bringing Up Down Syndrome (Southern NJ) Bucks County DS Interest Group (PA) Connecticut Down Syndrome Congress Down Syndrome Advocacy Foundation (Suffolk County, Long Island) Down Syndrome Assoc. of Westchester, NY Down Syndrome Group of Western PA Down Syndrome Parent Network of Eastern PA Down Syndrome Parent Support Group of Genesee County (NY) Down Syndrome Society of Rhode Island Down Syndrome Assoc. of Delaware Friends of Trisomy 21 Center (Philadelphia) Hudson Valley Down Syndrome Assoc. (NY)  Massachusetts DS Congress PODS - Montgomery County (Maryland) Network 21 (Central NJ) Southern Maine DS Family Network  Trisomy 21 of Northern NY Southeast: Down Syndrome Assoc. of Atlanta Down Syndrome Assoc. of Fredericksburg, VA  Down Syndrome Assoc. of Hampton Roads (SE Virginia) Down Syndrome Assoc. of the Lowcountry Charleston, SC Down Syndrome Assoc. of Memphis and Mid-South Down Syndrome Assoc.of Middle Tennessee Down Syndrome Assoc. of New Orleans Down Syndrome Assoc. of Northern Virginia Down Syndrome Assoc. of Roanoke, Virgina DS Family and Friends (Little Rock, AR) Down Syndrome of Louisville, KY Gold Coast DS Org. of Broward County, FL Gold Coast Org. of Palm Beach County, FL Gulf Coast DS Society (Southern Miss.) PC Downies (Panama City, FL) Piedmont DS Support Network (N Carolina) PODS Angels Support Group in Fort Lauderdale, FL Triangle Down Syndrome Network (N Carolina) Up With Downs (Shreveport, LA) Middle: Down Syndrome Assoc. of Central Ohio Down Syndrome Assoc. of Central Oklahoma Down Syndrome Assoc. of Greater Cincinnati Down Syndrome Assoc. of Greater St. Louis Down Syndrome Association of Minnesota Down Syndrome Assoc. of Northern Indiana Down Syndrome Assoc. of West Michigan Down Syndrome Assoc. of Wisconsin Down Syndrome Development Counsel (N. Ill.) F.E.D.S. (Sterling Heights, Mich) Indiana DS Foundation (Indianapolis) Kansas City Down Syndrome Guild Assoc. Miami Valley Down Syndrome Assoc. (Dayton, OH) National Assoc. for Down Syndrome (Chicago) NDSS Nebraska (Omaha) Oshkosh Down Syndrome Parent Support Group Riverbend Down Syndrome Parent Support Group (SW Illinois) SW Chicago Suburban Support Group Up With Down (Des Moines) Wichita Downs Support Group West & Southwest: Down Syndrome Assoc. of Central Texas Down Syndrome Assoc. of Houston Down Syndrome Assoc. of Los Angeles Down Syndrome Association of Orange County (Cal.) Down Syndrome Connection of Tucson Down Syndrome Guild of Dallas Down Syndrome Group of Salt Lake City DS Network (Phoenix, AZ) Down Syndrome Organization of Southern Nevada Down Syndrome Partnership of Tarrant County (Ft. Worth) Down Syndrome Support Group of the High Desert Down Syndrome Assoc of Ventura County (Cal.) Sharing Down Syndrome Arizona Southern Arizona Network for DS Rocky Mountain & Northwest: Colorado Springs Down Syndrome Assoc. Down Syndrome Outreach of Whatcom County (Wash.) Mile High Down Syndrome Assoc. (Denver area) Upside! (Wash.) Up With Down Assoc. (Utah County) Utah Down Syndrome Foundation Intercontinental US: Hawaii Down Syndrome Congress Alaska Chapter of the NDSC INTERNATIONAL SITES Argentina:      Asociacion Down de Avellaneda      Asociación Síndrome de Down de la República Argentina Australia:      DS Society of South Australia      DS Assoc. of New South Wales      DS Assoc. of Victoria      DS Assoc. of Western Australia      Australian Capital Territory DS Assoc.      DS Assoc. of Queensland Austria: Infoplattform Down-Syndrom Österreich Bahrain: Bahrain Down Syndrome Society Belgium: Tri21  Brazil: Fundacao Sindrome de Down Canada:      Calgary DS Assoc.      Canadian Down Syndrome Society      DS Assoc. of Metropolitan Toronto      Down Syndrome Research Foundation and Resource Centre      Manitoba DS Society Home Page      Newfoundland and Labrador DS Society      Assoc. du Syndrome de Down de L'estrie (Quebec) Croatia: Down Syndrom Centar Pula  Czech Republic:       Spolecnost Downova syndromu       Assoc. of Parents and Children with DS  Denmark:      Forældre til mongolbørn i København      Landsforening Downs Syndrom Ecuador: Frutos-Integral Attention Center Europe: European Down Syndrome Assoc. (EDSA) Finland: Downin oireyhtymä France: F.A.I.T 21 et G.E.I.S.T 21 Germany:      Down syndrome network Germany      Deutschen Down-Syndrom InfoCenter Honduras: Down Syndrome Foundation Hong Kong: Down Syndrome Association Iceland: Félag áhugafólks um Downs-heilkenni India: Down's Syndrome Federation of India Ireland:      Down Syndrome Ireland - Main branch      Down Syndrome Ireland - Mayo Branch Italy:      L'Associazione Italiana Persone Down      Associazione Genitori Bambini Down      Centro Bresciano Down      Pordenone DS Assoc. (English)      CE.N.TR.O. 21 -- Bologna      Sindrome di Down Japan: Japan Down Syndrome Network (link broken) Luxembourg: Trisomie 21 Lëtzebuerg a.s.b.l. (in French and German) Malta: Down Syndrome Assoc. of Malta Maylasia: Kiwanis Down Syndrome Centre under construction Mexico:      Resources in Mexico      Instituto Irapuatense Down, A.C.      Fundación John Langdon Down, A.C. Netherlands: Stichting Down's Syndroom New Zealand: New Zealand DS Assoc. Nigeria: Down Syndrome Association of Nigeria Norway:      Downsnett Norge      Marihøna Phillipines: Down Syndrome Assoc. of the Philippines Poland: Bardziej Kochani  Puerto Rico: Fundación Síndrome Down Romania: Sindrom Down Russia:      Down Syndrome Assoc. of Russia      Downside Up (this is a UK charity for Russian children with DS) Singapore: Singapore Down Syndrome Assoc. Slovakia: Spolocnost' Downovho syndrómu na Slovensku Slovenia: Sekcija za Downov Sindrom South Africa: Down Syndrome South Africa Spain:      Down 21: Fundación Síndrome de Down      Asociacion Sindrome de Down "Lejeune"      Fundacio Catalana Sindrome de Down      La Fundación Síndrome de Down de Cantabria Sweden: Downs Syndrom Sverige Switzerland:      EDSA Schweiz      Insieme - Vereinigung für Kinder mit Down-Syndrom      Association Romande Trisomie 21 Turkey: Down sendromu Dayanisma Grubu United Kingdom:      UK Resources for Down Syndrome      The UPs of Downs      UK Down's Syndrome Assoc.      UK Mosaic Down Syndrome Assoc.      DS Assoc of Bristol      Greater Manchester Branch of the DS Assoc.      Down Syndrome Liverpool      North East & Cumbria Branch      Down's Syndrome Assoc. London Branch      Oxfordshire Group of the DS Assoc.      Kingston Special Needs Project      Inter Care Residential Uruguay: La Asociacion Down del Uruguay Other International, non-internet resources indexed at:      http://www.nas.com/downsyn/org.html ONLINE MAGAZINES AND NEWSLETTERS Down Syndrome Quarterly (a multi-disciplinary journal) Disability Solutions Down Syndrome Amongst Us Ohrenkuss, a German magazine by people with DS MEDICAL RESOURCES Medical Descriptions of DS A description of Down Syndrome characteristics by Dr. Siegfried M. Pueschel Online Mendelian Inheritance in Man (OMIM) Page on DS (a medical description) General Health Guidelines Health Care Guidelines for People with DS Spanish Edition of DSMIG Guidelines Down Syndrome: Health Issues, from Dr. Len Leshin Genetics of DS Dr. Korenberg's Chromosome 21 Phenotype Mapping Project Online Mendelian Inheritance in Man (OMIM) Gene Map of chromosome 21 Risk and Recurrence of Down Syndrome by Dr. Paul Benke What is Mosaic Down Syndrome? by Carol Strom Animations of Meiosis and Fertilization Specific Medical Topics in DS Alzheimer's in DS by Dr. Ira Lott Brain and Tissue Bank for Developmental Disorders Center for Motor Behavior in Down Syndrome Dental Care in Down Syndrome: A Review of the Literature by Sindoor Desai, DDS Down Syndrome & Autistic-Spectrum Disorder (opens pdf file) Down's Syndrome Vision Research Group (Cardiff Univ., UK) Growth Charts for Children with Down Syndrome Hip Instability in Down Syndrome by Kim Voss Menstrual Management in Down Syndrome "Talk to Me": A personal development manual for women and girls with DS and their parents My Brother and Me: about Down Syndrome and Alzheimer's OTHER MISC. RESOURCES FOR PARENTS **Stanford's Center for Research and Treatment of DS** African-American with DS Austism and Down Syndrome: Dual Diagnosis> Breastfeeding a Child with Down Syndrome, by the Nursing Mothers Assoc. of Australia Breastfeeding and Down Syndrome, by the La Leche organization Communicating Partners, Dr. James McDonald's program Creative Exchange Music Therapy Diagnosis: Down Syndrome (a collection of stories for new parents of children with DS) Down Syndrome - For New Parents (by The Paul Family) Down Syndrome for Family and Friends Down Syndrome: A Parent's Perspecitve by Australian author Fiona Place> Have Ya Heard? The Ability of Downs How to Write a Letter of Intent or Life Plan Love and Learn Tapes for Teaching Reading "Me, Hailey", a website by author Sheri Plucker on being a parent of a child with DS> MetLife's "Division of Estate Planning for Special Kids" Music Therapy OT Exchange: a site for pediatric Occupational Therapists and parents who utilize OTs Parents' Resource - For new parents (by the Edwards Family) Tennis Academy for People with Down Syndrome The Upside of Down Syndrome Company Trisomy 21 Online Siblings Community Welcome to Holland, by Emily P. Kingsley Welcoming New Babies, by Pam Wilson NON-PROFIT FOUNDATIONS Annie Forts' Up Syndrome Fund, Inc. Down Syndrome Research and Treatment Foundation      (includes the Adopt a Mouse for DS program) Down Syndrome Advocacy Foundation Down Syndrome Research Online Advocacy Group Foundation 21 (Australia) The Karen Gaffney Foundation The Lindsey Rae Foundation Personal Ponies for Children with Disabilities The Possible Dream Foundation Trisomy 21 Foundation of Northern New York SCHOOLS / EDUCATIONAL COMMUNITIES / CAMPS Camphill Soltane - Pennsylvania Pathfinder Village - New York Green Oaks School - Arlington, TX Down Home Ranch - Austin, TX OTHER NOTABLE SITES Adult Artists with DS Chris Burke Fan Club Website Sujeet Desai: Pianist Extraordinaire Michael Jurogue Johnson: a painter and illustrator with DS Raymond Hu's Website: his story and paintings Jane Cameron, Sunshine Girl Bernadette Resha: Artist, Musician, Model, Magician Internet Miscellany DS International Swimming Organisation Afraid to Look Down: about the play by Cullen Douglas, a father of a boy with DS Adult Sibs of Individuals with MR/DD (New York City) Down Syndrome Web Ring The Marketplace "Beautiful Faces" Calendars and Note Cards Ups & Downs - An Anthology: seventeen individual stories written by families of children with DS Dolly Downs (from Camp Venture) Downi Creations (more dolls) Sign Language Rebus Books for Children with Special Needs Signing Time! ASL videos for children TLC Kids Company: educational materials for children with disabilties C-wide: Dolphin Trips Shifting Perspectives: 2006 Calendar Photographers of Children with Special Needs Special Kids Photography Homages, Memorials and Recollections Mountain View Elementary School's DS Site - - - - - - - - - - - - Home Page - Upcoming Events - News and Articles New Parent Welcome Area -Useful Links - Contact Us