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1.
Our Next Meeting: Is July 20th 6:30-8:30 at
Trinity Lutheran Church in Lansdale. The topic will be
transitions. We hope to have speakers to explain each
transition that we face. Sort of a transition 101
including helpful hints for early intervention. We are
definitely new to the whole transition thing, so I want to get a
good mix of seasoned veteran parents as well as
advocates/professionals in the field. If you have any
thoughts or ideas
Email them to us.
2.
The first NDSS electronic newsletter:
The National Down Syndrome Society has put together their
first enewsletter. Click
here to view the May/June e-Newsletter.
3.
IEPs In The News:
a.
Supreme Court says: parents may represent
themselves without a lawyer during disputes over IEPs
CNN's
Report on the decision
Justice Kennedy's Opinion
-
Aligning the IEP and Academic Content Standards to Improve
Academic Achievement - If your child has an
Individualized Education Program (IEP), it’s essential that
you understand how your state’s “academic content standards”
can be used to ensure strong academic achievement.
4.
Advice from a Mom on learning aids:
a.
Handwriting: Handwriting Without Tears
http://www.hwtears.com/. This is an awesome educational
assistance and can be requested in any public school or even for
homeschool in an IEP. You might have to go through the OT for
this aide. It starts with the basics print all the way to
cursive.
b.
Math: Also another thing that has helped with my
children with DS in math is the Dot System or Touch Math
http://www.touchmath.com/ This is also in the public school
programs.
5.
Buddy Walk:
a.
SAVE THE DATE for The Children's Hospital of
Philadelphia Buddy Walk and Family Fun Day on Sunday, Sept. 30,
2007 at 10 a.m. at Villanova Stadium on the campus of Villanova
University.
The walk raises funds for patient
care, research and education for the Trisomy 21 Program at
Children's Hospital. Trisomy 21, or Down syndrome, affects more
than 350,000 people in the U.S.
This event is great fun for the
whole family and includes a walk, food, music and activities for
all. We hope to see you there!
For more information, please visit
http://www.tri21center.org/, or contact Rebecca J. Elias at
267-426-5600 or by e-mail at
events@email.chop.edu
- Raising Money for the walk:
One family organizes a beef and beer type fest complete
with bands to contribute to the cause. This family's
team is predicted to be the top fund raiser for the walk,
but it is only starting. See how much you can raise.
Detials: On June
23, 2007 there will be a music festival at Duffer's Tavern in
Glen Mills that will benefit The Children's Hospital of
Philadelphia Trisomy 21 Center. For ticket information and more
details, please go to
www.dufferfest.com
- Our Contribution: Individual
MCDSIG families raise money for this event as well as
MCDSIG contributes $500 every year.
6.
More on Prenatal in the News: The NY Times got
the ball rolling on prenatal screening coverage. This New
England based TV channel ran a special report.
View it here.
7.
Inspirational Stories:
Student-athlete is their teacher
Helping is at heart of young scientists' work
A Ride For A Reason
'His future is endless,' mother says
Special needs instructor and blind teacher given awards
Bingo job a winner for Paul
Brothers excel in their own ways
Disarming disability A University office assistant with Down
syndrome excels at tasks with a work ethic and demeanor
- The R word in the news:
Retarded by association: When you make fun of my sister, it
hurts me Read
the full article online by clicking here.
9.
Vitamin Supplements in the news. A popular
supplement company that implies that it can cure genetic
ailments is facing the press and legal troubles. I heard a Wall
Street Journal article is in the works. Here is an article from
Texas about it:
Disputed claims boost popular supplements. NDSS put out a
memo earlier this year on their stance against supplements as
miracle cures.
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