Welcome New Parents
Congratulations on your new baby. The most important thing to remember is that your baby is a baby first and is not defined by his or her diagnosis of Down syndrome. Right now there may be a lot of emphasis on how your baby may be different and potential
medical problems he or she may face, but no one can predict future challenges so try to take things one day at a time. Over time, you will find that children with Down syndrome are more alike than different from other children.
Learning that your baby has Down syndrome is an overwhelming and emotional experience for most parents. You may initially feel confused, frightened, angry, saddened, and/or isolated. The good news is that you are not alone in your journey.
When Gail Williamson was pregnant with her son Blair in 1979, there was no one on TV with Down syndrome to help make the diagnosis less scary. Today, doctors tell parents that their babies will grow up and be like “Becky,” a character on “Glee” who has Down syndrome — and quite a bit of sass as she rocks a cheerleading uniform at the fictional William McKinley High School. Read the full story here.read more
Below is the information on the IDSC photo campaign. Also, featured on the home page of the IDSC website are newcomers to our group Adrienne, John and their new son, Wes. Read their story at http://www.idscforlife. and at http://www.theupsideofwes.blogspot.com/p/wes.html We have begun our newest campaign, and we would love for you to help us get the word out there about it! We are asking for photos again. This time, we will be adding a slogan to them, and then we will put it out through our Facebook, twitter, Pinterest, and our...read more
Peter is twelve years old. He has Trisomy 21—Down Syndrome and also, was diagnosed with Leukemia (PreB A.L.L) on July 18, 2011. He is currently in remission. Foremost, what characterizes our son is his love of music. He has been taking piano lessons from Converse College, in Spartanburg, South Carolina, for the past two and a half years. Total: Just over 21 minutes of performance May 29, 2012 We wanted to share our son’s Youtube.com channel with you – rosset4music – 7 videos Peter would like to get at least one...read more
May 8, 2012 Kelle Hampton is the author of the memoir Bloom: Finding Beauty in the Unexpected. “See that right there?” the obstetrician asked as she glided the sonogram wand across my middle and pointed to a blurry image on the monitor. “It’s a girl,” she announced. A girl — that meant a sister for my daughter, Lainey, which, according to my life plan, put me somewhere right near “exactly how it’s supposed to go.” Sisters. I anticipated their friendship the last months of my pregnancy just as...read more
ROMEOVILLE, Ill. (CBS) And as WBBM Newsradio’s Steve Miller reports, Maurice Booker Jr.’s son, Maurice Booker III, is not just any student. He has Down syndrome, but he has found widespread acceptance from his peers. “He knows there’s something special about him, but he feels as though he’s one of the regular kids,” Maurice Booker Jr. said. When Maurice III was growing up, Maurice Jr. says he had doubts about his son’s future. “Yes, there’s always been doubts, because I was a kid before, and I know kids can be cruel,” he...read more
May 8, 2012 By Tony Rossi Christopher Closeup podcast – Guest: Amy Julia Becker After her daughter, Penny, was unexpectedly born with Down syndrome, Amy Julia Becker experienced an emotional and spiritual crisis. As someone who was deeply devoted to her Christian faith and who even attended Princeton Theological Seminary, she naively thought things like this weren’t supposed to happen to her. But as Amy Julia grew to love and bond with her daughter, she got an education in love, God’s grace, and strength-in-weakness that no university...read more
Beautiful video made by a four year old and her parents for World Down Syndrome Day about her brother who has Down syndrome. http://www.takepart.com/article/2012/04/13/clip-day-4-year-olds-tribute-her-brother-down-syndromeread more
UCF recently partnered with the Down Syndrome Foundation of Florida to offer iCan Communicate, a program designed to help children with Down syndrome who have limited speech capabilities. This program, which was held March 22-24, consisted of therapy sessions and clinics to test how children responded to iPad apps created to help them communicate. “They didn’t want to be just handing out the same thing for every child because they really have individualized needs,” said Jennifer Kent-Walsh… Read the Full...read more
Call Montgomery County Early Intervention when your child arrives home from the hospital at 610-277-7176. Early Intervention will set up a time for your child to be evaluated in your home by a team of therapists. They will then make recommendations for the types of therapies your child needs based on their assessment. Therapists will contact you to set up a time to meet with you and your child regularly in your home. Please be aware that this process can take a few weeks to get established so be patient This and the therapies are no cost to...read more
by Emily Perl Kingsley Print Version I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this… When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy. You buy a bunch of guide books and make your wonderful plans. The coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian....read more